- Get Involved
- COVID-19 Resources
The Public and Patient Involvement team have been running "PPI Advice Clinics" for a few years now, and many of the same questions are asked each time. We have gathered together some of our favourite resources on this page to provide some initial support to anyone wanting to find out more about how to 'do PPI', from why it is important to how to cost out involvement in your grant application.
If you know of any resources that have been helpful to you, why not let the PPI team know so that they can be added here to help others? Contact the team on: PIExeter@exeter.ac.uk
If you are involving people in your research for the first time, then the Guides in this section are a good place to start your reading.
Of course, the best place to start is on the INVOLVE website, set up by the NIHR to support research and involvement in research.
NIHR ARC Oxford "Guide for researchers working with Patient and Public Involvement (PPI) Contributors" was co-produced by researchers and 'PPI Contributors' to help get new researchers up to speed.
We have created a brief guide, collecting together some of the accumulated wisdom of the team - a mini-guide to "Patient and Public Involvement for Researchers"
This can be one of the hardest aspects of planning for involvement - how much do you pay people? How do you effectively budget for involvement in a three-year project?
Our own in-ARC involvement group - PenPIG - helped us to write a payment policy for the ARC, which is a good place to start.
This example of a simple budget for a grant application demonstrates the sort of costs you may need to consider when planning your involvement.
If you are considering getting involved in NIHR research and have any concerns about how payments might affect your benefits you can contact Benefits Advice Service directly on 01234 330604 and at firstname.lastname@example.org. It is free, confidential and the advice is personalised using the latest regulations.’
If you have never involved someone from the public or a patient in your work before, it may be that you need some help with the practicalities - thinking about catering, how to put an agenda together, how to get output from a workshop etc. We are gathering resources in this section to help with all of the practicalities of involvement.
This booklet on facilitation techniques is a good place to start thinking about activities to use in your workshop to work with your involvees.
One aspect of research where involvement is a growth field is in research communications. Involving patients and the public in disseminating your research allows you to access 'grassroots' audiences that you otherwise may not know about and is appreciated by funding bodies.
This practical guide was co-created by a NIHR-funded project, the people they involved and Sense about Science (an independent charity advocating for the public understanding of science) to help you communicate with a lay audience in 5 Easy Steps....
Sooner or later you will want to advertise your workshop or project, and possibly even recruit lay people to a steering committee. Below are some example posters and leaflets advertising events, and a 'role description' that you can adapt and share with lay people you might recruit to a role within your research.
Example recruitment poster for a workshop
Example role description for a lay member of project steering committee
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