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Public and Patient Involvement Resources

The Public and Patient Involvement team have been running "PPI Advice Clinics" for a few years now, and many of the same questions are asked each time. We have gathered together some of our favourite resources on this page to provide some initial support to anyone wanting to find out more about how to 'do PPI', from why it is important to how to cost out involvement in your grant application.

If you know of any resources that have been helpful to you, why not let the PPI team know so that they can be added here to help others? Contact the team on: PIExeter@exeter.ac.uk

Getting started

Finance

Meetings and workshops

Communication

Recruitment

Getting started

If you are involving people in your research for the first time, then the Guides in this section are a good place to start your reading.

Of course, the best place to start is on the INVOLVE website, set up by the NIHR to support research and involvement in research.

NIHR ARC Oxford "Guide for researchers working with Patient and Public Involvement (PPI) Contributors" was co-produced by researchers and 'PPI Contributors' to help get new researchers up to speed.

We have created a brief guide, collecting together some of the accumulated wisdom of the team - a mini-guide to "Patient and Public Involvement for Researchers"

Finance

This can be one of the hardest aspects of planning for involvement - how much do you pay people? How do you effectively budget for involvement in a three-year project?

Our own in-ARC involvement group - PenPIG - helped us to write a payment policy for the ARC, which is a good place to start.

INVOLVE also have a payment and budgeting calculator (although it is more complex than it needs to be) and a series of resources and articles to help steer you through this topic.

This example of a simple budget for a grant application demonstrates the sort of costs you may need to consider when planning your involvement.

If you are considering getting involved in NIHR research and have any concerns about how payments might affect your benefits you can contact Benefits Advice Service directly on 01234 330604 and at contractsadmin@bedfordcab.org.uk. It is free, confidential and the advice is personalised using the latest regulations.’

Meetings and workshops

If you have never involved someone from the public or a patient in your work before, it may be that you need some help with the practicalities - thinking about catering, how to put an agenda together, how to get output from a workshop etc. We are gathering resources in this section to help with all of the practicalities of involvement.

This booklet on facilitation techniques is a good place to start thinking about activities to use in your workshop to work with your involvees.

Communication

One aspect of research where involvement is a growth field is in research communications. Involving patients and the public in disseminating your research allows you to access 'grassroots' audiences that you otherwise may not know about and is appreciated by funding bodies.

This practical guide was co-created by a NIHR-funded project, the people they involved and Sense about Science (an independent charity advocating for the public understanding of science) to help you communicate with a lay audience in 5 Easy Steps....

Recruitment

Sooner or later you will want to advertise your workshop or project, and possibly even recruit lay people to a steering committee. Below are some example posters and leaflets advertising events, and a 'role description' that you can adapt and share with lay people you might recruit to a role within your research.

Example recruitment poster for a workshop

Example role description for a lay member of project steering committee

 

 

Upcoming Events

Jan
21

PPI Advice Clinic

Online

Patient and Public Involvement Advice Clinics Whatever your query, from finding out more about Patient and...
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Jan
26

Searching and Review Clinic

Online

COVID-19 update: As a result of the pandemic, all PenARC staff are currently working remotely. While...
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Calendar

News

Could physical activity help minimise drug and alcohol use?

17 December 2020

Figures and surveys have shown that high-risk alcohol consumption increased during lockdown periods, while exercise...
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£300,000 from NIHR to investigate the views of older adults on strategies to improve recovery from planned surgery

10 December 2020

A team of researchers from across the University of Exeter Medical School, Royal Devon &...
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'Why physical activity matters more than ever'

01 December 2020

Professor of Health Service Research, Adrian Taylor, discusses motivation, exercise schemes, and the future impact on...
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News

Research Projects

Police Service Modelling Associates (PSMA) Programme

Theme: ARC - Methods for Research & Improvement

The PSMA Programme is a pilot programme which supports analytical staff working in policing to...
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Remote-by-Default Care in the COVID-19 Pandemic

Theme: ARC - Public Health

A research project to investigate how to ensure the delivery of effective care accessed remotely...
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Research Projects