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New Developments in Public Involvement Research Conference 2013

Consolidating the evidence base for public involvement in health services research

 

Organised by the PenCLAHRC Patient and Public Involvement Team, the conference was held in Exeter from 13th - 15th November 2013.

It focused on the latest developments in patient and public involvement (PPI), with the aim of building on the evidence base for public involvement in health services research, on the basis of an inspiring range of recent research projects.

The conference was attended by around 150 delegates, who travelled far and wide (the furthest flying in from Sweden, and Australia). Among the attendees were researchers, patients, carers, members of the public, health professionals and NHS research managers.

The programme contained a mixture of keynote lectures, presentations, workshops, interactive games and poster displays. Keynote speakers included Derek Stewart OBE, who is currently the Associate Director for Patient and Public Involvement at the National Institute for Health Research for the Clinical Research Network; Sir Iain Chalmers (one of the founders of the Cochrane Collaboration and coordinator of the James Lind Initiative); and Professor Jennie Popay, Professor of Sociology and Public Health at Lancaster University.

At the conference dinner on the Thursday evening, delegates were entertained by Radio 4 humourist and performance poet Matt Harvey. Inspired by Matt’s alternative approach to public engagement, Derek Stewart tweeted his own poem in response: “Invite a poet, To make a mark, So Inspiring, PenCLAHRC”.

A great deal of enthusiastic feedback has been received about the conference, and the organising team are to be congratulated on its success. Media covered included a spot on BBC Radio Devon and this piece on ITV news.

The team would themselves like to thank everyone involved, and particularly those who participated in discussions via the social media site Twitter, which saw the event’s hashtag #piexeter2013 trending as the top 8th health conference in the world. You can read these comments online via the Storify story.

Please click the links below to view presentations from some of our speakers:

Why involve the public in health research: democracy, legitimacy or efficiency? (PDF)

Keynote - Jennie Popay, Professor of Sociology and Public Health in the Faculty of Health and Medicine, Lancaster University

Experiences of patient and public involvement in medical research – a Healthtalkonline study (PDF)

Louise Locock, Health Experiences Research Fellow, Oxford NIHR Biomedical Research Centre
Anne-Marie Boylan, Senior Researcher, Health Experiences Research Group, University of Oxford

Collaborating with young people through a research advisory group (PDF)

Hayley Reed, Involving Young People Research Officer

Bridging the gap between good practice principles and research study realities. Using case studies to build descriptors of the public involvement role in the design and conduct of health research, and understand how research contexts constrain and enable involvement opportunities (PDF)

Rosie Davies, Service user researcher and PhD student, University of West of England

 

You can also view photos from the conference below, or via this link.

 

 

 

 

 

 

 

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