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Patient and Public Involvement in Research

Other pages in this section: Get involved in research | Resources for researchers | PenPIG

On this page: Who we are | Why PPI? I Get involved | Resources and support I PPI Publications I Contact us

What we do

  • The Patient and Public Involvement (PPI) team support PenARC researchers and students to involve the public in their research projects.

  • We conduct and publish research on how best to involve members of the public in health policy, research and practice. 

  • Through teaching, workshops and creating resources, we help members of the public to develop their own research questions. 

  • Our Patient and Public Involvement Group (PenPIG) work alongside the PPI team to help maximise the benefits of health research. 

We have several projects underway that involve parents with young children. We have been meeting at children’s centres and other child-friendly places so that parents can attend research meetings and bring their children at the same time. Our discussions have taken place surrounded by babies just few weeks old and lively pre-school children enjoying soft-play and toys.

One of these projects - PaReNt - seeks to explore the role of parent to parent support for parents whose babies are in a neonatal unit. In this photo researchers and involved parents are discussing outcome measures for the project:

Download our flyer (PDF) for a brief introduction to the PPI team, what we can do for you and how we work with PenPIG. You can also read our UPDATED Strategic Plan for 2017-2018 including our background, aims, and priorities.

Who we are

The PPI Team are Kate BoddyKristin LiaboEmma Cockcroft and Tanya Hynd, led by Professor Nicky Britten. To find out more about us, click on our names!

Why involve the public in research?

The experience that researchers and clinicians have of healthcare services often comes from a specialised and expert point of view. Patients and members of the public provide a different way of looking at things that can ground the discussion in practical experience. The lay perspective can make clear things that are so obvious the professionals have stopped noticing them and ask ‘naive’ but important questions that the experts are too well trained to think of.

Involving people in health and social care research is about giving the people who are meant to benefit from this research a say in shaping the research agenda. It requires lay people to be involved on an equal basis to academics and health care professionals. This includes not just participating in research that has been initiated by academics, but also in shifting the power balance so that users and carers can initiate research and work collaboratively with academics. 

How can I get involved? 

To get involved in our research, attend workshops, or join PenPIG, please contact the team via email. Your contact information will be kept private and will not be shared with anyone outside of PenARC.

Visit the Get involved page to see a list of current 'Calls for Involvement' with local healthcare-related organisations. 

Currently PenPIG does not have any free spaces, but we can add your name to a waiting list if you would like to be contacted when spaces become free. 

Resources and support for researchers

Although ultimately the PPI team are here to support PenARC projects, we may be able to give advice to external researchers. We hold free PPI Advice Clinics every month for researchers in Exeter. For the next available clinic in your area, please see the PenARC events page and search the months to find the next available PPI Advice Clinic.

We have produced a range of information and resources that you may find helpful. Please visit our Resources page to find out more. If you have a request for information, templates or worked examples then please email us and let us know.

Publications

The PPI team and PenPIG have written a number of academic publications based on their work. Find a full list of papers on the PPI Publications page. 

Contact Us

Email the PPI team  Follow us on Twitter

Upcoming Events

Jun
02

Searching and Review Clinic

Online appointments via Microsoft Teams

COVID-19 update: As a result of the pandemic, all PenARC staff are currently working remotely. While...
More information

Jun
09

PPI Advice Clinic

South Cloisters, St Luke's Campus, University of Exeter

Patient and Public Involvement Advice Clinics Held every month 30 minutes between 12pm-1pm Whatever your query, from finding...
More information

Calendar

News

Research collaboration leads “rapid response” data analysis to aid NHS during COVID-19 epidemic

29 April 2020

A collaboration between PenARC and University of Exeter Researchers and the NHS has developed a crucial new tool...
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COVID-19 Update Newsletter available now

28 April 2020

Our latest newsletter, with news of how we are responding to the Covid-19 crisis, plus an invitation...
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Five tips from project to support people with dementia and carers in COVID-19 lockdown

27 April 2020

Five tips from project to support people with dementia and carers in COVID-19 lockdown New...
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News

Research Projects

Understanding research priorities for young people with long term health conditions

Theme: ARC - Complex Care

A project to identify and describe, through patient and public involvement activities, the research needs of...
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Getting Up Following a Fall

Theme: ARC - Complex Care

Although there is evidence that falls can be prevented, little attention has been paid to...
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Research Projects