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When Andrea Shelley arrives to talk about her patient and public involvement (PPI) journey, her willingness to contribute is apparent from the get-go. ‘To share what you’ve been through is key to making the NHS work’ she says, fresh from a session volunteering at the local arts centre on her day off from a demanding, public-facing, role. ‘I started out with PenPIG (PenCLAHRC’s Patient Involvement Group) two years ago. I went to meetings, heard things and had no idea what was going on. I was confident in my voice, in my experience, but I wasn’t confident in asking questions’. Invited...Read more
Peninsula Public Involvement Group (PenPIG) member, Malcolm, has recently embarked on a journey to become a Cochrane Citizen Scientist. According to Cochrane, ‘Citizen Scientists’ play an important role in the research community and ‘help identify the evidence needed to make informed healthcare decisions.’ For Malcolm, becoming a ‘Citizen Scientist’ was an obvious choice due to his experience and background.
Throughout his lifetime, like many of us, Malcolm has witnessed his friends and family endure multiple health complications. His experiences sparked an interest in medical research, and he soon found himself on various boards and groups; from leading health walks for his...Read more
PenCLAHRCs Patient Public Involvement (PPI) team got a visit from Norway, who were interested in learning how the team collaborate with patients, carers and members of the public in research.
The visitors, who are leaders at the regional health authority of Northern Norway and health researchers at Tromso University and Tromso hospital, engaged with members of the Public Involvement Group (PenPIG) and the PPI team over the course of two days.
Dr Kristin Liabo said: "As always we learn something when we share our work with others, and our visitors said they were now inspired to initiate more patient and public involvement in their area."
As well as...Read more
Carers have spoken about the value of sharing their experiences with students and researchers at the University of Exeter Medical School, to increase awareness and help support other carers in the community.
Volunteer Heather Boult, from Countess Wear in Exeter, said:
“As part of Carers week, it's about saying you are not alone in how you feel. Speak up and get involved in research, as it's the most rewarding, challenging and best way to change and improve the future for all patients. Don't be your illness or your NHS number or' just a patient', you are a person with a voice and...Read more
A recent study showing a simple and inexpensive therapy to be equally effective at treating depression as Cognitive Behavioural Therapy was supported by PenCLAHRC Patient Involvement Group (PenPIG) member Nigel Reed.
Nigel formed part of the COBRA team – one of the largest studies in the world to assess treatments of depression through a randomised controlled clinical trial of two psychological interventions; Behavioural Activation (BA) and Cognitive Behaviour Therapy (CBT).
The study led by researchers from the University of Exeter, included colleagues from the Universities of York, Kings College London, and Tees Esk and Wear Valleys NHS Foundation Trust, as well as...Read more
Conducting research that is relevant to the concerns and needs of patients and the public is a key part of what PenCLAHRC does. Our renowned Patient and Public Involvement (PPI) Team use innovative methods to ensure meaningful patient and public involvement and engagement is embedded in everything we do.
Key to our PPI success is the Peninsula Patient and Public Involvement Group (PenPIG) who have been working alongside PenCLAHRC since 2009 to maximise the benefits of health research and ensure it maintains relevance to the patient. The group is made up of a diverse selection of volunteers, with many having personal...Read more