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The health and wellbeing of parent carers is often overlooked. But now, with a funding boost of nearly £40,000 from the National Lottery Community Fund, a peer-led support programme for parents of disabled children in communities across the southwest is set to be further extended.
The Healthy Parent Carers programme for parent carers of disabled children (aged up to 25 years) provides information about small steps that can be taken every day to improve health and wellbeing using the acronym CLANGERS (Connect, Learn, be Active, Notice, Give, Eat well, Relax and Sleep). Parents are invited to take part in NHS-funded research, led by...Read more
A support programme to help parents of disabled children stay healthy in mind and body will begin its first trial in the coming months, and is looking for participants.
Healthy Parent Carers is a programme which aims to help parents cope with the strain of being carers by encouraging them to take a bit of time to focus on their own wellbeing.
The study, run by the Peninsula Childhood Disability Research Unit (PenCRU) at the University of Exeter, will investigate the effectiveness and feasibility of implementing the scheme in Devon, Cornwall and Somerset. It is funded by the National Institute for Health...Read more
On Thursday 5th July 2018, the NHS turned 70 years old.
Since its inception, the NHS has constantly evolved in response to changing needs, and has transformed the health and wellbeing of the nation. To commemorate this, our Patient and Public Involvement (PPI) team have created an animation encouraging public involvement in health research.
The team worked closely with Mary, a parent carer of a disabled child, and a member of PenCRU's Family Faculty. In the video, Mary discusses what persuaded to get involved in research, and why she would encourage others to do so.
Dr Kristin Liabo, Senior Research Fellow in the Patient and Public Involvement team, emphasises...Read more
The results of a clinician-led study will inform a new evidence based guide for therapists prescribing sleep positioning systems for patients with neuro disabilities. It is hoped that this guide will help to outline the potential benefits and risks associated with the systems in practice as far as possible.
Sleep positioning systems (SPS) can be prescribed for adults and children with neuro disabilities to help reduce or prevent hip deformity, provide comfort, ease pain, and improve sleep.
Some clinicians have been recommending this type of equipment for many years, however, due to the lack of definitive evidence of the effectiveness of the...Read more
Learning to manage going to the toilet independently is an important milestone in child development. Being continent involves recognising that you need to go to the toilet, controlling until an appropriate place can be found, urinating and/or defecating, and cleaning up afterwards.
Children with special educational needs and disability may be slower to learn to manage going to the toilet, or need extra help, but many can become continent with the right support. Clinicians often recommend ways to improve continence, including toilet training programmes, nappies and other products, aids and equipment, medicines and surgery. Children should be assessed carefully by clinicians...Read more
Inspired by her own experience as a mum to child with autism, a dental hygienist has published new research hoping to make dental examinations less stressful for autistic children.
Nicole Thomas, from the Plymouth University Peninsula Schools of Medicine and Dentistry, suggests that giving children the power of choice could make a world of difference to a child with autism. Something as simple as allowing a child to select the colour of mouthwash they use after a dental examination can improve their experience. With support from PenCLAHRC, Nicole worked alongside researchers at the Peninsula Cerebra Research Unit (PenCRU) at the University of Exeter...Read more