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When Andrea Shelley arrives to talk about her patient and public involvement (PPI) journey, her willingness to contribute is apparent from the get-go. ‘To share what you’ve been through is key to making the NHS work’ she says, fresh from a session volunteering at the local arts centre on her day off from a demanding, public-facing, role. ‘I started out with PenPIG (PenCLAHRC’s Patient Involvement Group) two years ago. I went to meetings, heard things and had no idea what was going on. I was confident in my voice, in my experience, but I wasn’t confident in asking questions’. Invited...Read more
Peninsula Public Involvement Group (PenPIG) member, Malcolm, has recently embarked on a journey to become a Cochrane Citizen Scientist. According to Cochrane, ‘Citizen Scientists’ play an important role in the research community and ‘help identify the evidence needed to make informed healthcare decisions.’ For Malcolm, becoming a ‘Citizen Scientist’ was an obvious choice due to his experience and background.
Throughout his lifetime, like many of us, Malcolm has witnessed his friends and family endure multiple health complications. His experiences sparked an interest in medical research, and he soon found himself on various boards and groups; from leading health walks for his...Read more
PenCLAHRCs Patient Public Involvement (PPI) team got a visit from Norway, who were interested in learning how the team collaborate with patients, carers and members of the public in research.
The visitors, who are leaders at the regional health authority of Northern Norway and health researchers at Tromso University and Tromso hospital, engaged with members of the Public Involvement Group (PenPIG) and the PPI team over the course of two days.
Dr Kristin Liabo said: "As always we learn something when we share our work with others, and our visitors said they were now inspired to initiate more patient and public involvement in their area."
As well as...Read more
On Thursday 5th July 2018, the NHS turned 70 years old.
Since its inception, the NHS has constantly evolved in response to changing needs, and has transformed the health and wellbeing of the nation. To commemorate this, our Patient and Public Involvement (PPI) team have created an animation encouraging public involvement in health research.
The team worked closely with Mary, a parent carer of a disabled child, and a member of PenCRU's Family Faculty. In the video, Mary discusses what persuaded to get involved in research, and why she would encourage others to do so.
Dr Kristin Liabo, Senior Research Fellow in the Patient and Public Involvement team, emphasises...Read more
Senior PenCLAHRC staff members have shared their experiences of patient and public involvement in research (PPI), in video interviews with health information website healthtalk.org.
The website is run by a charity and provides free, reliable information about people’s experiences of more than 85 health-related issues including cancer, pregnancy, drugs and motor-neurone disease.
It was set up in 2001 by Oxford GP Dr Ann McPherson CBE and Dr Andrew Herxheimer after Dr McPherson was diagnosed with breast cancer and couldn’t find anyone to talk to about what it was like to experience the illness.
In his interview with the website, Director of PenCLAHRC Professor...Read more
PenCLAHRC Research Fellow, Kate Boddy from the Public and Patient Involvement team, has won this year’s Images of Research competition under the theme of Collaboration, with her image called 'Public Participation'.
The competition is open to all research staff and aims to engage the public in academic research, showing the breadth and creativity of what is taking place at the University. It also provides an excellent opportunity for Early Career Researchers to communicate their research to non-specialists and gain valuable skills in public engagement and impact.
Kate said of her win:
This competition allowed us to showcase our work to a wide audience...Read more
Conducting research that is relevant to the concerns and needs of patients and the public is a key part of what PenCLAHRC does. Our renowned Patient and Public Involvement (PPI) Team use innovative methods to ensure meaningful patient and public involvement and engagement is embedded in everything we do.
Key to our PPI success is the Peninsula Patient and Public Involvement Group (PenPIG) who have been working alongside PenCLAHRC since 2009 to maximise the benefits of health research and ensure it maintains relevance to the patient. The group is made up of a diverse selection of volunteers, with many having personal...Read more