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Room 3.06, South Cloisters, St Luke’s Campus, Exeter and video-conferenced to F083 Knowledge Spa Truro
17th May 2018
11:00 - 12:00
Learning, Knowing, Doing Series Seminar
Speaker: Dr Sarah Knowles, NIHR Knowledge Mobilisation Research Fellow, Greater Manchester CLAHRC
Data, Patients, Action! Patient involvement in knowledge mobilisation in a Learning Health System
A Learning Healthcare System (LHS), which uses routinely collected data to enable rapid, potentially real time knowledge mobilisation, is being developed across the North of England through the Connected Health Cities programme. The LHS aims to use electronic health data to better integrate services, and identify and deliver rapid and sustained service improvements. Patients themselves are intended to be central to a high functioning LHS, but it is unclear what this could or should look like in practice. In this talk, I will argue that patients can contribute directly to both the ‘data’ and the ‘action’ stages of LHS improvement cycles. I will present findings from qualitative and co-design research projects exploring patient involvement in two Connected Health City themes of work, Stroke Care and Community Wound Care. The two cases illustrate how patient involvement can inform decisions about what data is collected and prioritised for improvement, and how patients can contribute to implementing changes and evaluating impacts to inform further learning. They also demonstrate the need to tailor opportunities for involvement to different patient groups. I will use the findings to illustrate the value of qualitative research, stakeholder involvement and implementation science in helping to address the barriers and realise the opportunities of LHSs in practice.
Sarah Knowles is an implementation scientist with the Greater Manchester CLAHRC, specialising in patient and public involvement, codesign and participatory methods, and process evaluation. Her particular interests are in digital health, patient experience, mental health and coproduction. She currently holds an NIHR Knowledge Mobilisation Fellowship which is exploring how patients can be involved in implementation within Learning Health Systems. She blogs about this work at www.datapatientaction.wordpress.com and tweets @dr_know.
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